Documenting all the places
personal data goes.


Legend: with your name, without your name.
Click on a circle above for names of organizations and details of data shared.

Professional associations seek to further a particular profession and represent the interest of the professional practitioners (Ex. American Medical Association). They may gather health information about you, as pertinent to promote their member’s profession.


Alaska State Hospital and Nursing Home Association collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.


American Pharmacist Association (APhA), had a data breach in 2012, in District Of Columbia. Hackers associated with the group Anonymous posted donations, emails, personal account information, server information, and other information from APhAs online database. The hackers also claim to have accessed the records of 16,000 patients by hacking the website, but did not post that information. Anonymous claims that the organization was targeted due to its connection to government officials.UPDATE(6/09/2012): Some names and addresses were also posted. The data posted included information on over 28,000 visitors, donors, and members.UPDATE(07/18/2012): The website was defaced on May 28. APhA immediately noticed and shut down the website and related computer servers. However, names, addresses, and credit card information (excluding security codes) stored on computer servers may have been accessed between April 23 and May 28. (28,000 records involved) [source].


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