Documenting all the places
personal data goes.

U.S. States are the Biggest Data Provider on the HealthDataMap

The HealthDataMap identifies discharge data as the biggest provider of health data. States and hospital consortiums in the United States receive patient health data from hospitals, physicians and other healthcare providers usually by state legislative mandate. Thirty three states make a version of the data publicly available once certain identifiers like patient name and birthdate have been removed or made less detailed. The redactions are not standardized and differ by state. Because these datasets follow state law, they are not covered by the Health Information Portability and Accountability Act (HIPPA), which is the U.S. federal legislation that protects patient information. Only 3 states share the information using standards as tough as those prescribed by HIPAA. Most states (30) share data in a manner that is not as tough as HIPAA prescribes [source].

33 States sell or give away personal health data.

Only 3 use protections as strict as HIPAA.

Below are the names of the state organizations, whether the states has a legislative mandate, and the costs charged for the datasets.

Additionally, here are some other links for you to learn what kind of data the states offer, who are the top buyers of state offerred data, and a demonstration of the risks involved.

ArizonaYesArizona Department of Health Services.$135
ArkansasYesArkansas Department of Health.$485
CaliforniaYesCalifornia Office of Statewide Health Planning & Development.$200
ColoradoNoColorado Hospital Association.$0.02 for record
District of Columbia
FloridaYesFlorida Center for Health Information and Policy Analysis.$100 / year ($25/quarter)
HawaiiNoHawaii Health Information Corporation.$1,035
IllinoisYesIllinois Department of Public Health.$100+
IowaYesIowa Hospital Association.$585
KentuckyYesKentucky Cabinet for Health and Family Services- Office of Health Policy.$1,535
MaineYesMaine Health Data Organization.$675
MarylandYesHealth Services Cost Review Commission.$35
MassachusettsYesDivision of Health Care Finance and Policy. $835
MissouriYesMissouri Department of Health and Senior Services.$150+
NevadaYesHealthcare Cost and Utilization Project (HCUP).$$435
New HampshireYesNew Hampshire Department of Health & Human Service.
New JerseyYesNew Jersey Department of Health & Senior Services.$60
New MexicoYesNew Mexico Department of Health.$485 (only 2009 and 2010 available)
New YorkYesNew York State Dept of Health. $350, final price determined at time of request
North CarolinaYesCecil G. Sheps Center for Health Services Research at the University of North Carolina at Chapel Hill.$535
North Dakota
OklahomaYesOklahoma State Department of Health.$50-7500
OregonYesOffice for Oregon Health Policy and Research.$250
PennsylvaniaYesPennsylvania Health Care Cost Containment Council (PHC4).$4,500
Rhode IslandYesRhode Island Department of Health.$115
South CarolinaYesSouth Carolina State Budget & Control Board, Office of Research and Statistics.$1.25 per 1,000 records with a minimum of a $100 charge
South DakotaYesSouth Dakota Association of Healthcare Organizations.$785
TennesseeYesTennessee Hospital Association (THA) Health Information Network.$10,000
TexasYesTexas Health Care Information Collection, Center for Health Statistics, Texas Department of State Health Services.$6,000 recent years, 1999-2006 free
UtahYesOffice of Health Care Statistics, Utah Department of Health.$3,150
VermontYesDivision of Health Care Administration.
VirginiaYesVirginia Health Information.$975-$2500
WashingtonYesWashington State Department of Health.$50
West VirginiaYesWest Virginia Health Care Authority.$510
WisconsinYesWisconsin Hospital Association.$835

Notes: Costs were surveyed in 2012 and were amounts to research institutions for inpatient unrestricted versions of public data files for most recent year available. A blank value indicates that State does not release public data. Some States have data available through Healthcare Cost and Utilization Project (HCUP) at the U.S. Agency for Healthcare Research and Quality (AHRQ), and these datasets may be at a different price and may offer different fields than those available directly from the State. [source]

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