U.S. States are the Biggest Data Provider on the HealthDataMap
The HealthDataMap identifies discharge data as the biggest provider of health data.
States and hospital consortiums in the United States receive patient health data from hospitals, physicians
and other healthcare providers usually by state legislative mandate.
Thirty three states make a version of the data publicly available
once certain identifiers like patient name and birthdate have been removed or made
less detailed. The redactions are not standardized and differ by state. Because these
datasets follow state law, they are not covered by the Health Information
Portability and Accountability Act (HIPPA), which is the U.S. federal legislation
that protects patient information. Only 3 states share the information using
standards as tough as those prescribed by HIPAA. Most states (30) share data in a manner
that is not as tough as HIPAA prescribes [source].
33 States sell or give away personal health data.
Only 3 use protections as strict as HIPAA.
Below are the names of the state organizations, whether the states has a legislative mandate,
and the costs charged for the datasets.
Additionally, here are some other links for you to learn
what kind of data the states offer,
who are the top buyers of state offerred data,
and a demonstration of the risks involved.
|Arizona||Yes||Arizona Department of Health Services. http://www.azdhs.gov/||$135 |
|Arkansas||Yes||Arkansas Department of Health. http://www.healthy.arkansas.gov/||$485 |
|California||Yes||California Office of Statewide Health Planning & Development. http://www.oshpd.ca.gov/||$200 |
|Colorado||No||Colorado Hospital Association. http://www.cha.com/||$0.02 for record|
|District of Columbia|
|Florida||Yes||Florida Center for Health Information and Policy Analysis. http://ahca.myflorida.com/SCHS/||$100 / year ($25/quarter)|
|Hawaii||No||Hawaii Health Information Corporation. http://www.hhic.org/||$1,035 |
|Illinois||Yes||Illinois Department of Public Health. http://www.idph.state.il.us/||$100+|
|Iowa||Yes||Iowa Hospital Association. http://www.ihaonline.org/||$585 |
|Kentucky||Yes||Kentucky Cabinet for Health and Family Services- Office of Health Policy. http://www.chfs.ky.gov/ohp/||$1,535 |
|Maine||Yes||Maine Health Data Organization. http://www.maine.gov/mhdo/||$675 |
|Maryland||Yes||Health Services Cost Review Commission. http://www.hscrc.state.md.us/||$35 |
|Massachusetts||Yes||Division of Health Care Finance and Policy. http://www.mass.gov/dhcfp ||$835 |
|Missouri||Yes||Missouri Department of Health and Senior Services. http://www.dhss.mo.gov/||$150+|
|Nevada||Yes||Healthcare Cost and Utilization Project (HCUP). http://www.hcup-us.ahrq.gov/sidoverview.jsp||$$435 |
|New Hampshire||Yes||New Hampshire Department of Health & Human Service. http://www.dhhs.nh.gov/||Free|
|New Jersey||Yes||New Jersey Department of Health & Senior Services. http://www.state.nj.us/health/||$60 |
|New Mexico||Yes||New Mexico Department of Health. http://www.health.state.nm.us/||$485 (only 2009 and 2010 available)|
|New York||Yes||New York State Dept of Health. http://www.health.state.ny.us/||About $350, final price determined at time of request|
|North Carolina||Yes||Cecil G. Sheps Center for Health Services Research at the University of North Carolina at Chapel Hill. http://www.shepscenter.unc.edu||$535 |
|Oklahoma||Yes||Oklahoma State Department of Health. http://www.ok.gov/health/||$50-7500|
|Oregon||Yes||Office for Oregon Health Policy and Research. http://www.oregon.gov/OHPPR/||$250 |
|Pennsylvania||Yes||Pennsylvania Health Care Cost Containment Council (PHC4). http://www.phc4.org/||$4,500 |
|Rhode Island||Yes||Rhode Island Department of Health. http://www.health.state.ri.us/||$115 |
|South Carolina||Yes||South Carolina State Budget & Control Board, Office of Research and Statistics. http://ors.sc.gov/||$1.25 per 1,000 records with a minimum of a $100 charge|
|South Dakota||Yes||South Dakota Association of Healthcare Organizations. http://www.sdaho.org/||$785 |
|Tennessee||Yes||Tennessee Hospital Association (THA) Health Information Network. http://www.tha-hin.com/||$10,000|
|Texas||Yes||Texas Health Care Information Collection, Center for Health Statistics, Texas Department of State Health Services. www.dshs.state.tx.us/thcic/||$6,000 recent years, 1999-2006 free|
|Utah||Yes||Office of Health Care Statistics, Utah Department of Health. http://www.health.utah.gov/hda/||$3,150 |
|Vermont||Yes||Division of Health Care Administration. http://www.bishca.state.vt.us/||Free|
|Virginia||Yes||Virginia Health Information. http://www.vhi.org/||$975-$2500|
|Washington||Yes||Washington State Department of Health. http://www.doh.wa.gov/||$50 |
|West Virginia||Yes||West Virginia Health Care Authority. http://www.hcawv.org/||$510 |
|Wisconsin||Yes||Wisconsin Hospital Association. http://www.wha.org/||$835 |
Notes: Costs were surveyed in 2012 and were amounts to research institutions for inpatient unrestricted
versions of public data files for most recent year available.
A blank value indicates that State does not release public data.
Some States have data available through Healthcare Cost and Utilization Project (HCUP) at
the U.S. Agency for Healthcare Research and Quality (AHRQ), and these datasets may be at a different price
and may offer different fields than those available directly from the State.