theDataMap

Documenting all the places
personal data goes.

healthDataMap


Legend: with your name, without your name.
Click on a circle above for names of organizations and details of data shared.


Hospital consortiums or entities authorized by the state receive patient health data from providers (e.g., hospitals and physicians) and distribute that information to researchers, analytic companies, prescription analytic companies, public health departments, the CDC, health payers, other government entities, health information technology companies, the FTC, online websites, employee unions and providers.

States and hospital consortiums receive patient health data from providers and in many states make that data publicly available (usually by legislative mandate) once certain identifiers like patient name and birthdate have been removed or made less detailed. For information on which states share patient data and the amount of identifiable information they provide, see State Survey Maps, Demographic Info, Admit-Discharge Info, HIPAA Equivalence, and Costs.

For a demonstration of how to put personal names to this kind of data, see Risks.

Examples

Alaska State Hospital and Nursing Home Association collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Arizona Department of Health Services collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Arkansas Department of Health collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

California Office of Statewide Health Planning & Development collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Colorado Hospital Association collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Connecticut Office of Health Care Access collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Delaware Health Statistics Center, Division of Public Health collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

District of Columbia Hospital Association collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Florida Center for Health Information and Policy Analysis collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

GHA: An Association of Hospitals & Health Systems collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Hawaii Health Information Corporation collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Idaho Hospital Association collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Illinois Department of Public Health collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Indiana Hospital Association collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Iowa Hospital Association collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Kansas Hospital Association collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Kentucky Cabinet for Health and Family Services- Office of Health Policy collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Louisiana Department of Health and Hospitals collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Maine Health Data Organization collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Health Services Cost Review Commission, Maryland State collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Division of Health Care Finance and Policy, Massachusetts State collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Michigan Health & Hospital Association collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Minnesota Hospital Association collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Mississippi Dept of Health, Office of Health Informatics collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Missouri Department of Health and Senior Services collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

MHA - An Association of Montana Health Care Providers collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Nebraska Hospital Association collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Center for Health Information Analysis at University of Nevada at Las Vegas collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

New Hampshire Department of Health & Human Services collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

New Jersey Department of Health & Senior Services collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

New Mexico Department of Health collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

New York State Dept of Health collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Cecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

North Dakota Department of Health collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Ohio Hospital Association collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Oklahoma State Department of Health collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Office for Oregon Health Policy and Research collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Pennsylvania Health Care Cost Containment Council (PHC4) collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Rhode Island Department of Health collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

South Carolina State Budget & Control Board, Office of Research and Statistics collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

South Dakota Association of Healthcare Organizations collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Office of Health Statistics, Tennessee Department of Health collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Texas Health Care Information Collection, Center for Health Statistics, Texas Department of State Health Services collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Office of Health Care Statistics, Utah Department of Health collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Division of Health Care Administration, Vermont State collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Virginia Health Information collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Washington State Department of Health collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

West Virginia Health Care Authority collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Wisconsin Hospital Association collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Wyoming Hospital Association collects, sells or gives away statewide, person-specific information about hospital discharges [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

The Agency for Healthcare Research and Quality (AHRQ) is a division of the U.S. Department of Health and Human Services focused on researching public health policy and implementation issues.AHRQ sells and purchases statewide personal hospital discharge data. AHRQ purchased data from at least 3 states: CA, PA, and TX [source]. AHRQ also sells statewide personal hospital discharge data for 23 states through its Federal-State-Industry partnership called the Healthcare Cost and Utilization Project (HCUP). [source]

  

Clinical Outcomes Assessment Program (Coap) purchases statewide personal hospital discharge data from at least WA [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Dfwhc Foundation purchases statewide personal hospital discharge data from at least TX [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Health Market Science purchases statewide personal hospital discharge data from at least CA FL NJ TN WA [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Hospital Industry Data Institute purchases statewide personal hospital discharge data from at least WA [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Peardiver Technologies Inc purchases statewide personal hospital discharge data from at least CA WA [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Strategic Healthcare Measures purchases statewide personal hospital discharge data from at least CA WA [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

University Healthsystem Consortium purchases statewide personal hospital discharge data from at least WA [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

Vaida Health Data Consultants purchases statewide personal hospital discharge data from at least CA [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard.

  

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