Documenting all the places
personal data goes.
Legend: 
with your name,
without your name.
Click on a circle above for names of organizations and details of data shared.
Online Websites receive information from you, the patient and often from other sources, such as discharge data for many services and external products.
Discussion Groups are also examples of online website where you may share personal health information with others.
See also personal health records.
Examples
WebMD Health hosts a popular website. The New York-based company reportedly uses hospital data to counsel had 110 million monthly corporations and insurers on trends in health markets, not for advertising, said spokeswoman Kate Hahn. Advertising brought in 83 percent of WebMD's $469.9 million in sales last year. WebMD Health Corp. purchases statewide personal hospital discharge data from at least 8 states: AZ, CA, IL, MD, NJ, NY, PA, TN, and WA [Source, June 2013] The purchased data does not contain the person's name, but it is possible to match some people by name [source]. | The Personal Genome Project is an example of an online website that allows you to share your medical and genomic information with the public, once you are registered and qualified. Public profiles do not bear the person's name, but people can often be re-identified by the fields of information commonly found there (date or birth, gender, 5-digit ZIP). [source] | |
CPM Health Grades Marketing Group purchases statewide personal hospital discharge data from at least NJ FL [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard. | Health Grades purchases statewide personal hospital discharge data from at least MD WA TX CA NY ME [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard. | |
HealthShare Technologies, Inc., acquired by WebMD, purchases statewide personal hospital discharge data from at least ME [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard. | Santa Barbara Homeless Blog purchases statewide personal hospital discharge data from at least CA [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard. | |
State Of Maryland - HSCRC purchases statewide personal hospital discharge data from at least CA [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard. | US Oncology purchases statewide personal hospital discharge data from at least WA [source]. See more information about the fields of data shared, an example of matching real names to the records in statewide discharge data, and which states use standards less than the HIPAA standard. | |