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   Health Data Map 2010

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Information on

these edges

may be de-identified or aggregated,

but not on

these edges.

Health Data Map 2010 (above) shows representative flows of personal health data 8 years after the promulgation of the HIPAA Privacy Rule. The number of entities receiving information more than doubled. New additions include data, outcome, and disease management organizations, and more billing and offshore services. Entities that once received aggregate, temporary or de-identified information now receive identifiable data. An example is accreditation and quality assessment. The source of the information is first hand knowledge from Dr. Latanya Sweeney and the Data Privacy Lab's work in numerous settings with patient information, including on legal cases, de-identification efforts, and re-identifications of de-identified data [Sweeney 2010].

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See also

 

Copyright © 2012 President and Fellows Harvard University.